Read about Penny - a new hero!
Dear readers,
I was reading on CNN.com and this story caught my attention. Read about Penny. Her story touched my heart and made a difference in my life.
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I was reading on CNN.com and this story caught my attention. Read about Penny. Her story touched my heart and made a difference in my life.
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Editor's note: We
first met Penny when she wrote to us about a CNN photo gallery showcasing
disfigured children and stillborn babies affected by Agent Orange in Vietnam.
Penny spoke of the anger and sadness she felt over seeing CNN's "viewer
discretion" warning on the gallery. She was born with a disease that left
part of her own face malformed and felt compelled to reach out to us about the
children who simply look different. "How can I not speak up about
this?" she asked. "If not me, who will speak on behalf of these children?"
We invited her to educate us all by sharing her story and allowing us to see
the world through her eyes.
(CNN) --
As a little girl, she never got a valentine at school parties.
As a teenager, she never had a best friend, a boyfriend or a date.
As a woman, she's never had a relationship. She's never been
kissed.
Her dream to one day become a wife and mother is fading as she
grapples with the reality that it may never happen.
Penny Loker, 31, was born with hemifacial
microsomia and Goldenhar
Syndrome, two birth defects that left her with a disfigured face.
Hemifacial microsomia causes a malformation of the ear and/or the structure of
the lower jaw. Goldenhar Syndrome is a congenital condition that produces
abnormalities of the head and the bones of the spinal column. It usually
affects the appearance of eyes, ears, facial bones and the mouth.
Both conditions are complex, as are their names. But for a little
girl facing a big world, the names were simple: Monster. Ugly. Freak.
Loker was raised in Waterloo, Ontario, Canada, in a home where
love and acceptance were given freely.
Her father died soon after Loker's first birthday. Her mother, a
strong, loving woman, readily took on the challenge of raising Loker and her
sisters. That included arranging for multiple surgeries at hospitals far from
home
.
Loker's recoveries were lengthy and painful, recalls older sister
Crystal Loker. "But even then Penny had a positive attitude. She was a
trouper who kept her smile and didn't complain."
At home, Loker's looks were not an issue and she was treated the
same as her sisters. She knew she looked a bit different, and she knew it
caused her to be in the hospital a lot, but she had a child's innocence and
accepted it as normal.
When it was time to start school, she discovered how different she
actually was. She spent a lonely childhood excluded from nearly everything. She
had no friends. She accepted the name-calling as part of her life and seemed to
understand that crying or fighting back only made it worse. So she quietly
endured it.
She remembers that pain and humiliation well. "As an adult,
it's hard to stand by silently when you know what these kids are going through,"
Loker says. "But it's equally difficult to speak out when you don't feel
empowered to do so."
As she got older, the name-calling was more often behind her back
than to her face. By the time she reached high school, she had learned there
would be no friends, parties or dates for a girl who looked like a freak.
"It hurt, but there was nothing I could do to change
it," she says.
While day-to-day encounters with strangers brought the same
hurtful stares and comments, Loker was used to it. Then came a day with such
cruelty it remains a vivid memory.
"For graduation my sister gave me a gift certificate for a
manicure and pedicure. I'd never had one before, and it was a wonderful
experience. I left the spa feeling truly pretty for the first time in my adult
life."
But less than a block from the salon, she encountered a carload of
boys who slowed to look at her and began pointing and calling her names.
Distraught, she walked as quickly as she could to get away from
them, thinking all the while that she was not beautiful after all.
"The pretty nails made no difference at all. Shamed and
humiliated, I realized I was still the same girl that everyone made fun
of," she recalls. "I remember that day as one of the worst."
But time can ease all wounds, and her determined spirit taught her
to find the good around her.
She has a core group of girlfriends and relatives who cherish her
as she is. She speaks proudly of being able to provide for herself, thanks to
her job at Rogers Communications, where she spends her days handling customer
requests. The company was recognized this year as a diversity leader
corporation, a recognition that only adds to Loker's pride.
There are many adventures in life that she is hesitant to embrace,
even though she is physically able. She prefers not to shop alone. She has
never been on a true vacation, saying the thought of one is scary.
Yet it's a feat she is determined to accomplish. She is saving now
for a trip to California to visit either BlizzCon or Comic-con.
"I'm kind of a geek and play the online MMO World of Warcraft
with my sister and her husband, and we always talk about how cool it would be
to go there," she says. "People dress up so I would feel 'normal',
not out of place."
She's quick to point out she has no interest in visiting a theme
park geared toward children, where she'd likely be subjected to stares as
parents attempt to answer questions about her.
She wishes she could open the dialogue about individuals with
malformations by educating people, especially children, whose natural curiosity
can eventually become cruelty if left unaddressed.
"Educating them early on would help them learn to be more
tolerant of others who are different. The ability to love, share, bring
happiness and help others is the real beauty of a person," she says.
"The exterior doesn't necessarily reflect the beauty that
often lives inside. And when people fail to remember that, they can miss out on
the love and friendship of a truly special person."
Crystal Loker agrees. "Penny is truly beautiful. She's always
seeing the best in others and never has an unkind word for anyone. In Penny's
world, others always come first. She's full of laughter and smiles. When you
spend a day with her, you go home feeling good about yourself."
Loker welcomes the opportunity to teach all of us to see beyond
the surface. But until then, she continues to hope for good days in her own
life, which for her means days when she is ignored.
"When I go out to dinner with my friends and no one stares at
me or asks to be moved to a table further away from me, that's a good
day," she says.
In spite of it all, Loker is quick to point out her many
blessings: Being able to share a home with her family, having a job she loves,
having good friends and a good health care system to help with the cost of a
lifetime of surgeries.
Her only regret?
"I have so much love to give and I would love to share that
with a family of my own. I understand it will probably never happen, and I'm
learning to accept it. But I am sad about it," she says. "It feels
like the one great loss in my life."
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This makes me think about the next time I am quick to judge. People want to be treated with kindness. They want to be accepted for who they are. Our weakness, our faults, our imperfections - they make us who we are. They can also be our strengths, our greatness, our perfections. As we accept each other for who we are, our barriers will come down and goodness will come forth. Because together we can do so, so much. Penny is true beauty.
Love,
Megan
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